The ethics of informed consent at end of lifePeer reviewed journal article in Medicine, Anthropology, Theory (in press) Trinity Western University | Publication | 2016-10-24 | |
Diagnosis: Total Pain in Hospital Palliative CarePeer-reviewed book chapter Trinity Western University | Publication | 2016-12-01 | |
Communicating Prognostic Uncertainty in Potential End of Life ContextsPeer-reviewed journal article Trinity Western University | Publication | 2016-07-12 | |
Negotiating tensions in supporting clinicians to provide person-centered palliative carePresentation on May 31, 2016, The Palliative Care Research Group, Institute of Health and Care Sciences, University of Gothenburg, SwedenCAT2014-17 Trinity Western University | Publication | 2016-03-31 | |
Desirable features of a Quality of Life Assessment and Practice Support System (QPSS) in Palliative Acute and Home CareCAT2013-51, CAT2014-17 McGill University, Trinity Western University, University of Victoria, Fraser Health Authority, Jewish General Hospital | Publication | 2016-03-31 | Esther Laforest, Richard Sawatzky, Kara Schick Makaroff, Kelli Stajduhar, Marian Krawczyk, Rong Wang, Neil Hilliard, Charlene Neufeld, Judy Lett, Carolyn Tayler, James Voth, Robin Cohen |
A Better LifeThis short film describes an exhausted father-son duo who look to quality of life assessments to improve their care as a patient and as a caregiver.
https://vimeo.com/user99737276/abetterlifeSSA2019-05 | Intellectual Property | 2019-09-24 | |
The validation and use of patient-reported outcome and experience measures in older adult populationsCAT2013-51, CAT2014-17 Trinity Western University | Publication | 2015-11-17 | |
Integrating a quality of life assessment and practice support system in palliative home care Presentation on November 10, 2015, Mindmerge conference, Victoria, BCCAT2014-17 Trinity Western University | Publication | 2015-11-10 | |
An Electronic Quality of Life and Practice Support System (QPSS) for Person-centered Older Adult CareWebinar in April 2016.
http://www.cfn-nce.ca/news-and-events-overview/news-and-events/webinars/an-electronic-quality-of-life-and-practice-support-system-(qpss)-for-person-centered-older-adult-care/CAT2014-17 Trinity Western University | Publication | 2016-03-31 | |
Integrating a quality of life assessment and practice support system in palliative home careWebinar in Oct 2015. http://www.ipanel.ca/publications-presentations/webinars/archived/341-integratin-qol-assessments-acute-careCAT2014-17 Trinity Western University, Fraser Health Authority | Publication | 2015-10-15 | |
The Development and Use of Tablet-Based Quality of Life Assessment Instruments in Clinical PracticeWorkshop on Sept 9 - 12, 2014, at 20th International Congress on Palliative Care, Montreal, QC, Canada,CAT2014-17 Trinity Western University, Jewish General Hospital, McGill University, University of Victoria | Publication | 2014-09-09 | |
Supporting quality of life assessments of frail older adults and their family caregiversCFN Webinar: Jan 22, 2020CAT2018-17 Trinity Western University, University of Alberta | Publication | 2020-01-22 | |
Enhancing the voices of palliative homecare clients and their familiesPresentation on Jun 17, 2015, Fraser Health Research Week, Langley, British Columbia, CanadaCAT2014-17 Fraser Health Authority, Trinity Western University | Publication | 2015-06-17 | |
Impact of Health System Changes on the Delivery of Palliative Care at HomePatients’ ability to die at home is heavily dependent on the efforts of family caregivers (FCGs). Even where patients receive home care services, the likelihood of dying at home is reduced if FCGs are unable to provide care. Our team is currently conducting an intervention aimed at identifying FCG needs for support. The intervention, however, has been challenging to implement in the context of constant changes in the home care environment. We undertook a qualitative study to document the impact of health system changes on the delivery of palliative care at home. We conducted focus groups and in-depth interviews with 29 home care nurses and 9 key informants. Data were thematically analyzed to gain insight and better understanding of how these changes were impacting nursing care specifically and home care nurses abilities to care for patients and FCGs.
Findings suggest that system issues such as increasing medical and psychosocial complexity of patients and FCGs, increasing volume of home care patients, and late admission to home care and palliative care are influencing the ability to provide quality care. Organizational changes and a drive to reduce service to patients in home care, underpinned by the need for system efficiency, were also identified. Findings also suggest home care nursing practice is changing to meet these system demands in ways that are not always aligned with the core principles and philosophies of palliative care.Core2013-01 University of Victoria, Trinity Western University | Publication | 2017-09-22 | |
Integration of Quality of Life Assessments into Acute Care for Older Adults with Chronic Life-Limiting Illness: Clinician Perspectives.Poster presented at the 2nd Annual Conference on Improving Care for the Frail Elderly, Toronto, ON, September 21-23, 2014.CAT2013-51 Trinity Western University | Publication | 2016-03-14 | Glenda King, James Voth, Kara Schick Makaroff, Charlene Neufeld, Judy Lett, Richard Sawatzky |
Integrated Approach to Palliative Care in Acute Care: Emerging Lessons from a Participatory Research ProjectPoster presentationCAT2015-32 University of Victoria, Trinity Western University, Fraser Health Authority | Publication | 2017-04-24 | |
Integrated Palliative Approach to Care in Acute Care: Emerging Lessons from a Participatory Research ProjectPoster presentation CAT2015-32 University of Victoria, Trinity Western University, Fraser Health Authority | Publication | 2017-05-04 | |
Integrating quality of life assessments into acute care for older adults with chronic life-limiting illnesses. Poster presented at the 22nd International Society of Quality of Life Conference, Vancouver, BC, October 22, 2015CAT2013-51 University of Alberta, McGill University, Jewish General Hospital, Trinity Western University | Publication | 2016-03-14 | |
Quality of life Assessment and Practice Support System (QPSS) in acute carePoster presented at the 3rd Annual Conference on Improving Care for the Frail Elderly, Toronto, ON, September 27-29, 2015.CAT2013-51 McGill University, Jewish General Hospital, Trinity Western University | Publication | 2016-03-14 | |
Experiences of Integrating Electronic Assessments Within Tertiary Palliative Care: Use of the Quality of Life Assessment and Practice Support System (QPSS)Oral Presentation. 21st International Congress on Palliative Care, Montreal, Canada, October 18-21 2016.CAT2013-51 Jewish General Hospital, University of Victoria, McGill University, Fraser Health Authority, Trinity Western University | Intellectual Property | 2016-03-14 | "Krawczyk, M ", Kara Schick Makaroff, Robin Cohen, Kelli Stajduhar, Esther Laforest, Rong Wang, Neil Hilliard, Charlene Neufeld, Judy Lett, Carolyn Tayler, James Voth, Richard Sawatzky |