CFN Funded ProjectsProducts
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| Impact of Health System Changes on the Delivery of Palliative Care at HomePatients’ ability to die at home is heavily dependent on the efforts of family caregivers (FCGs). Even where patients receive home care services, the likelihood of dying at home is reduced if FCGs are unable to provide care. Our team is currently conducting an intervention aimed at identifying FCG needs for support. The intervention, however, has been challenging to implement in the context of constant changes in the home care environment. We undertook a qualitative study to document the impact of health system changes on the delivery of palliative care at home. We conducted focus groups and in-depth interviews with 29 home care nurses and 9 key informants. Data were thematically analyzed to gain insight and better understanding of how these changes were impacting nursing care specifically and home care nurses abilities to care for patients and FCGs.
Findings suggest that system issues such as increasing medical and psychosocial complexity of patients and FCGs, increasing volume of home care patients, and late admission to home care and palliative care are influencing the ability to provide quality care. Organizational changes and a drive to reduce service to patients in home care, underpinned by the need for system efficiency, were also identified. Findings also suggest home care nursing practice is changing to meet these system demands in ways that are not always aligned with the core principles and philosophies of palliative care.Core2013-01 University of Victoria, Trinity Western University | Publication | 2017-09-22 | | | Integrated Approach to Palliative Care in Acute Care: Emerging Lessons from a Participatory Research ProjectPoster presentationCAT2015-32 University of Victoria, Trinity Western University, Fraser Health Authority | Publication | 2017-04-24 | | | Integrated Palliative Approach to Care in Acute Care: Emerging Lessons from a Participatory Research ProjectPoster presentation CAT2015-32 University of Victoria, Trinity Western University, Fraser Health Authority | Publication | 2017-05-04 | | | Experiences of Integrating Electronic Assessments Within Tertiary Palliative Care: Use of the Quality of Life Assessment and Practice Support System (QPSS)Oral Presentation. 21st International Congress on Palliative Care, Montreal, Canada, October 18-21 2016.CAT2013-51 Jewish General Hospital, University of Victoria, McGill University, Fraser Health Authority, Trinity Western University | Intellectual Property | 2016-03-14 | "Krawczyk, M ", Kara Schick Makaroff, Robin Cohen, Kelli Stajduhar, Esther Laforest, Rong Wang, Neil Hilliard, Charlene Neufeld, Judy Lett, Carolyn Tayler, James Voth, Richard Sawatzky | | Desirable features of a Quality of Life Assessment and Practice Support System (QPSS) in Palliative Acute and Home CareCAT2013-51, CAT2014-17 McGill University, Trinity Western University, University of Victoria, Fraser Health Authority, Jewish General Hospital | Publication | 2016-03-31 | Esther Laforest, Richard Sawatzky, Kara Schick Makaroff, Kelli Stajduhar, Marian Krawczyk, Rong Wang, Neil Hilliard, Charlene Neufeld, Judy Lett, Carolyn Tayler, James Voth, Robin Cohen | | The Development and Use of Tablet-Based Quality of Life Assessment Instruments in Clinical PracticeWorkshop on Sept 9 - 12, 2014, at 20th International Congress on Palliative Care, Montreal, QC, Canada,CAT2014-17 Trinity Western University, Jewish General Hospital, McGill University, University of Victoria | Publication | 2014-09-09 | | | Feasibility of Routine Quality of Life Measurement for People Living With Dementia in Long-Term CareSSA2021-07 University of Victoria, University of Alberta | Publication | 2021-08-01 | Matthias Hoben, Sube Banerjee, Anna S. Beeber, Stephanie A. Chamberlain, Laura Hughes, Hannah M. O\textquotesingle Rourke, Kelli Stajduhar, Shovana Shrestha, Rashmi Devkota, Jenny Lam, Ian Simons, Emily Dymchuk, Kyle Corbett, Carole A. Estabrooks | | Feasibility of routine quality of life assessment in long-term care homes2021 Annual CAHSPR Conference “Hindsight, Insight and Foresight, May 19-21, 2021SSA2021-07 University of Victoria, University of Alberta | Publication | 2021-05-19 | |
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